Curating human-subject data can be daunting, and ethical concerns are further amplified when we hope to publish the data in a public repository. The Tri-Council Panel on Research Ethics released “Guidance on Depositing Existing Data in Public Repositories” to assist researchers and research professionals with managing human-subject data in accordance with the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (TCPS). The new guidance addresses secondary use of human-subject data, consent to future use and waivers of consent, along with issues needing consideration from Research Ethics Boards as they assess proposed sensitive data deposits in repositories.
Join us for a discussion with Victoria Smith, the Digital Research Alliance of Canada’s Policy, Privacy and Sensitive Data Co-ordinator, for a quick overview of the guidance, and her insights on what it means to our work and how we can utilize it. Bring your stories, challenges, and questions to this community-led discussion on Tri-Agency Guidance on Depositing Existing Data in Public Repositories.
This session will be presented in English with opportunities for French discussion. If you are interested in moderating a breakout session in English or French, please let us know! Sessions are not recorded. Group notes and a feedback survey will be shared with registered attendees after the call.
These calls are free and open to all interested parties working in data curation. Please RSVP to reserve your spot and receive the information to connect via Zoom.